One guys ramblings on being diagnosed with Crohn's Disease.
Jake: Ok so my mum wanted to share her thoughts on the last 6 weeks as came to the end of our hospital stay.
I’ve not been allowed to change any of the words in the below, so apologies for the OTT compliments in places. They made me cringe too.
Mum: “I’ve just read Jakes account of the past 6 weeks and a diagnosis of IBD.
Sounds so simple when you say it, but nothing about the past 2 months have been simple.
Continue reading “A word from my Mum”
Today was the day!! After 54 days in total over the last 10 weeks (not counting my hospital hiatus where I went home to get much worse) I was finally discharged again.
In case you were wondering, those 54 days equate to roughly:
Continue reading “Free!! Free at last…”
During my time in hospital, I’ve found that Nurses and the Healthcare Support staff are generally excellent. I really mean it, these people make all the difference and are a credit to their professions. Some of them strike just the right balance of friendly, supporting and capable while working incredibly hard under extremely stressful circumstances. Continue reading “The good, the bad, and the potato”
So with the Crohns symptoms relatively under control (no more detail needed, but frequency is key and frequency is down at the moment) and the dietician confirming that once I get home I’m all systems go on LOFFLEX, there is just one more thing thats needed to get me back to relatively normal. My weight. Continue reading “Wait, wait, wait… Weight”
Being in hospital is really starting to get old now. I didn’t really feel like celebrating the start of the 6th consecutive week yesterday so was a bit down, however today has been an EXCELLENT day.
Continue reading “Today was a good day”
I know I’m in here for my own benefit, and that its the best place for me right now (blah blah blah), but as my stay in hospital hopefully nears its end I have kinda been getting cabin fever. Case and point, I went to pick up some toilet paper the other day and immediately thought “Ohhh this isn’t good! This one must have got wet or something because its gone all fluffy”… It was normal Andrex that my mum had brought in. I actually forgot what normal toilet paper felt like. Get me out of here! Continue reading “What NOT to say”
I never saw a dietician during my first hospital stay, and that definitely played a part in not only why I was re-admitted, but also my ignorance around how important food is to this disease. I kinda just assumed I could carry on as I was so did when I went home. I think my first dinner out of hospital was a LOT of Pizza Hut…
WRONG!!! OHHH BOY WAS I WRONG. Continue reading “Everybody get lo, lo, lo, LOFFLEX”
SOMETHING MIRACULOUS HAS HAPPENED!!!
After nearly a month of Elemental diet (yellow liquid-y crap) and plain jacket potatoes, today the dietician said I was allowed, *drumroll*…
It shocked me to find out that I have absolutely nothing to say that isn’t related to this goddamn disease recently. I’ve become such a self-centred bore for example that my best mate was over from America where he now lives and not only did I TOTALLY forget he was still in the same country as me for once, after he reminded me and asked if he could come visit the best conversation Continue reading “Me, me, me, me, me”
When they start you on steroids and fluids they always mention the throwaway line “oh these things will cause some swelling”…PAH what an understatement!!!
Im sure its just because of the amount of these things in my system (5 weeks of both by this point) but the most traumatic and painful night of my hospital stay was down to some intense swelling.
It starts off small, normally with jokes about cankles from my Dad or just having a puffy face and hands.
Jakes Crohnology 